With Heartfelt Thanks From Augie’s Quest to Cure ALS
Posted: December 22, 2017 in Other News
Augie’s Quest
A Message From Augie and Lynne Nieto: In many ways, Lynne and I have been lucky in this disease. It’s why we started Augie’s Quest to Cure ALS nearly 13 years ago, making a conscious decision to go after ALS with everything we’ve got – and encouraging all of you to join us on this crazy, but life-changing ride!
We’re so thankful to each one of you for joining our quest. It’s been worth the journey, hasn’t it?
Because of you, today, we’re in the nonprofit business of funding innovative research, building effective treatments and fast-tracking drugs through the ALS Therapy Development Institute – all to ultimately find a cure for ALS. Since our diagnosis, you — our family, dear friends and the entire fitness community — have rallied right there with us to fund that crucial research and innovative science. You’ve given in droves, of your time, talent and resources. This was our most successful fundraising year for Augie’s Quest bringing our total to more than $60 million.
In fact, our collective work is resulting in a promising new treatment that may slow the progression of ALS. And, we will have this first drug, AT-1501, in clinical trials in early 2018. It’s not a cure, but in our testing, it is showing it may slow down the progression of the disease. Which means, if we can help people live longer with the disease, we’re better able to pursue a cure. This is a real tipping point in the ALS space.
It’s truly an exciting time, one we could hardly imagine only a decade ago. And for that, we are truly thankful. Right now, the only thing holding us back, are the urgent funds to bring it to market – and begin to change people’s lives for the better!
Because ALS isn’t an incurable disease; it’s only underfunded. This is a disease we can tackle, this is a problem we can solve for so many living with ALS today.
Within a year’s time, we could very likely be in a very different place. Can you imagine that? A world where ALS doesn’t stand a fighting chance? It’s what keeps us going.
With heartfelt thanks and holiday wishes,
Augie & Lynne
